My Gluten Free Story

A Little History

I have had digestive and reflux problems since I was a baby. I have literally had problems since I was just a few weeks old. My parents tried everything, including some very strange diets, in order to figure out what was wrong with me. I was a sickly child that was always underweight. I also had and still have, severe asthma and allergies.

As an adult I have continued to suffer with various health problems including infertility and endometriosis. I could write pages and pages on my various health problems, doctors that I have seen, and tests that I have had done.

Currently I have severe relflux problems, otherwise known as GERD (gastroesophageal reflux disease). Nine years ago, my esophagus was so severely scarred and narrowed from years of refluxing that I had trouble eating. I was actually getting food stuck in my esophagus, and it got so bad I could not even swallow my own spit.

At this point I found a GI Dr. that finally listened to me and understood my need to figure out what was wrong. He stretched my esophagus out so that I was then able to eat. After this procedure I did a lot better, because of the repair the Dr did and the medicine that I was on, but my acid reflux continued. Damage was still being done.

Seeking The Cause

Over the years I have tried various things to help my reflux. I have done no dairy, no refined sugar, no sugar, whole grains, no meat, etc. I tried not eating after dinner, so that I would not reflux at night. Nothing helped.

I have never been your average reflux patient. When you are diagnosed with with reflux problems they give you a list of things to avoid, none of them were things I was doing. I have never been overweight and do not have weight to lose. I have never drank coffee or tea. We do not eat a lot of greasy high fat food. We do not eat out more than a few times a month. Yes, I eat some chocolate and a pop or two a week (though I tried eliminating that also), but not enough to cause the problems or damage that I have had.

Getting Worse

About 3 years ago I started refluxing so bad at night that I was refluxing food into my lungs and coughing up visible chunks of rice, beans, etc., in the middle of the night. My reflux was far from under control.

I went through another round of tests, and they could not find anything wrong with my esophagus or stomach that would be causing these issues. At this time, I also had 14 polyps removed from my stomach and told my vocal chords were in very bad condition due to the years of reflux. I went through yet another round of test to see if surgery would help my problem. I was told it would not.  I was then put on another medicine for my reflux and told it should help. I continued to get worse.

After researching Celiac disease and the gluten free diet, I decided to give it a try because I was desperate to find something that would help me. My mom had tried no wheat, when I was a child, but never removed all gluten from my diet. So, I thought it was worth trying. After less then two weeks, I was so much better. I can’t even begin to explain how much better I felt. After years of reflux and other intestinal problems, I finally knew what normal was and it was so nice. I was no longer waking up multiple times in the night due to my reflux and coughing up food. Just being able to sleep through the night was worth the change of diet.

My GI Dr. agreed that Celiac and/or gluten issues made sense. He put me back on wheat to run the tests for Celiac.  I had blood tests, a scope, and an intestinal biopsy. My blood work was negative for Celiac and so was my biopsy, but during the scope my Dr found damage. My vocal chords are still so damaged that no one knows why I have a voice at all. Medically speaking I should not be able to speak. He also found damage to my small intestines.

Finally A Solution

If you know anything about gluten issues, intolerance, allergies, Celiac, etc,  you know what difficult things they are to tack down, diagnose and deal with. I don’t want Celiac, and am glad that my test have come back negative.

However, my GI Dr. feels that because of my history and the fact that I have so much damage, that I should keep my diet gluten/wheat free. I agree because I feel so much better with wheat out of my diet.

My doctor may not be able to tell me why a wheat/gluten free diet works, but it does and for now that is all I need to know.

The Plan Now

I have now been gluten/wheat free again for almost three weeks, and it is great. I feel like a new person. I seriously do not remember ever feeling this good. I have no desire to eat gluten filled cakes and cookies again. I now know what they do to me, and I have lost all desire to eat like that again.

My Dr. did say to eat what I feel like eating and if it bothers me don’t eat it. So, I am going to try adding back in some things like oatmeal and rice crispies, that contain some gluten, but very little, and see how I react.

So, what does this mean for this site?

Will it change? No, it won’t change. I plan to continue to do what I have always done post recipes, tips, and kitchen ideas that everyone can use.

I have been posting mainly gluten free recipes for the last few weeks. Most of our meals have been gluten free, yet they have been normal food that anyone can eat. Most things can simply be adjusted by using corn tortillas instead of flour ones or by using rice pasta instead of regular pasta. Many desserts are gluten free or I can make them gluten free. Puddings can me made gluten free by simply using cornstarch instead of flour. I plan on doing what I have always done on this site.

Plus, since I am not considered a Celiac, I do not have to worry as much about things like cross-contamination. Which is good, since the rest of my family likes wheat and things that contain it.  We are still working out exactly how much our eating as a family will change. For now I am fixing gluten free food for dinner, but the rest of my family is eating things like pancakes, bread, etc for the rest of their meals.

Baking gluten free does involve using some specialty flours, so I may start posting occasional recipes that contain those things. If I do that, I will post them on a specific day.  That way, if you are interested in that, you can be sure to read that post, but if you do not need gluten free baked goods, than you can skip that post. I think by having a specific day for those recipes it will help you know what to expect. I am still working on what day I will do that on, and honestly I have a long way to go before I have any gluten free baked goods worth posting on. Believe me, I have had more disasters than successes when cooking with the specialty flours.

Overall, I hope nothing will change on my site and that you will continue with me in my adventures in the kitchen. I still have lots of recipes, ideas, kitchen tips, and reviews that I want to post on.

My readers are what makes this site great, and I hope you will continue to join me as I continue to make healthy and wholesome recipes and meals for my family.

Lynn

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{ 50 comments… read them below or add one }

Barbara Asbury January 16, 2010 at 7:11 pm

Hi Lynn, your comments about gluten-free are almost a carbon copy of mine. I am so much better now that its hard to explain to someone who ‘doesn’t get it’. Good for you in wanting to try cutting out gluten yourself – most dont want to do that. It turned out that I am also sensitive to glutamates in foods, but in different ways (pain, aches, etc). I didn’t give up pancakes, bisquits or the like, but I have changed to a gluten free flour mix which is readily available in Colorado, and makes tolerable items. I don’t miss the cookies and rolls either, because they are associated with the pain! Happy life to you…..

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Lisa February 5, 2010 at 9:21 am

Hi,
I am so sorry that you have had to go through all of that.
I have had very similiar issues over the past three years.
I have very bad acid reflux. I went to a nature path and she told me I was very sensitive to gluten, sugars and dairy as well as a few other things.
I have had my gallbladder out in 2008 hoping that would help. I had hietal surgery August 2009. I guess I did one to many dialations now I am having problems again. Might have to do the surgery again. Ugh. Anyways I am trying very hard to stay away from gluten, sugar and dairy. I have a flew slip ups now and then. I do feel so much better when I stay away from those things. Here’s to feeling better and getting healthy.
Take Care and I hope to get to know you better.

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Jackie February 18, 2010 at 3:01 pm

http://www.heavenlyhomemakers.com had a huge list of gluten free recipes today, just thinking of you

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Tona February 21, 2010 at 8:49 pm

A friend passed this to me b/c in March I hope to create a blog…I am a foodie and have a child with gluten, dairy, nut intolerances. She has limited dairy now…mainly some cheese once a week or twice. I will tell you there is a great book also Eating Right 4 Your Type. Its so interesting….

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Char March 10, 2010 at 11:45 am

I was just diagnosised with celiac about 3 weeks ago and I am still trying to adjust to everything. One of the biggest challanges so far has been making gf meals that taste good to both me and my significant other. We are big fans of bread and pasta; so going gf has been huge. The adjustment to alternative grains for pasta hasn’t been too hard, but we are still searching for a bread that can be deemed good.

Thanks for sharing recipes and ideas – they definitely help spark meal ideas for us.

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Jenni March 15, 2010 at 10:56 pm

It was encouraging to me to read about your success in this area! For the past 1 1/2 years, I’ve had bad acid reflux. I’ve had my esophagus expanded a few times – once it was almost as bad as you described. My doctors can’t come up with any reasons. Just tell me the same thing – Don’t know why you’re experiencing this at your age and weight. I already know that I’m actually allergic to eggs. Just this week, I decided to take on the challenge to eliminate gluten to see if it helps my symptoms. I’ve only gone a few days, so we’ll see. If it’s not gluten, I’ll move on and try avoiding a different food. I think that since my acid reflux appeared out of the blue around the time that my allergies got HORRIBLE, may I developed a food intolerance. We’ll see! It’s encouraging to see someone that has made it through to the other side! :) Will definitely be referencing your blog in the future.

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Lynn March 16, 2010 at 10:16 am

@Jenni, I hope you figure out what is bothering you. If not with gluten with something else. I know how miserable it is to suffer with severe reflux. I really wish I had tried the gluten free diet before because I am so much better. I would give it a couple of weeks to see if the gf diet is working. I could tell a little difference in a few days, but it really took at least 10 days before I was really sure that was what it was. I have heard stories from people that it took them longer. Also, really watch the gluten/wheat. You already may know this, but the sneak it in things I never would have thought of. For years I took TUMS for my reflux, but it never really helped, but I took it because I thought I should. Well, guess what TUMS contains, gluten/wheat. It is right on the ingredients. All this time I was taking them thinking they were helping me and in reality they were making it worse. So, my advice read labels, if you really want to be gluten free to see if that is the cause. Let me know if you have any questions, I still have a lot to learn in this area, but I will try to help if I can.

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Jessica March 18, 2010 at 12:51 pm

Congratulations. Being gluten free can be challenging, but well worth it. It has been almost three years since I became gluten free and about two for my oldest daughter. I has made a huge difference in our lives. like you we do not have Celiacs, we caught it before it had caused that much damage. There are some other gluten free cooking sites that you can check out. Good luck.

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Lisa March 24, 2010 at 12:16 pm

I started to go gluten free about half a year ago because I was having terrible stomach issues, really bad acid reflux, and a ton of other things. I had a rash around my mouth for months that refused to go away despite lots of different creams from the dematologist. I started to suspect gluten and read that vitamin B would help celiac patients that have vitamin deficiency from damaged intestines that can’t absorb the nutrients. After only a few days, the rash was gone and all my other symptoms were getting better. I slowly changed my diet and by the time I saw the doctor, the blood test for celiac was negative because I had already done diet changes. I was so excited to finally feel better so I didn’t want to go back on gluten to do further tests; I just pushed it to the future. Last summer, when I was at my worst, I visited the bathroom 10 times per day and finished off almost a bottle of Mylanta per week. I could no longer drink coffee or tea and forget eating oatmeal – it all gave me terrible acid reflux. The GF diet changed all that. The only time I have trouble with that now is when I accidentally (or stupidly) have some gluten in my food, like I did a couple of weeks ago. I got really bad and persistent headaches (almost like sinus headaches), bad acid reflux (hello Mylanta, goodbye tea and coffee), and constipation. I’m starting to recognize these symptoms when I get glutened. I’ll start to keep a health diary/calendar in order to better see the patterns. The GF diet is not easy at times (especially when eating out), but it is worth it!! I hope you feel back to normal soon and I hope you keep blogging. :-)

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Lynn March 24, 2010 at 12:35 pm

@Lisa, Thank you for taking the time to comment. I cannot believe how many people like you have commented or emailed me since I posted my gluten free story. I had no idea that there were so many people out there dealing with the same issues. I am so thankful when people take the time to comment or email me. It lets all of us know that we are not alone in dealing with this issue. I am feeling so much better. I really have no desire for gluten because I know what it does not me. I feel so much better. Yes, at times it is very difficult, but it is so worth. Thank you again!

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Lisa T April 12, 2010 at 8:31 pm

I feel for ya! My son was diagnosed Celiac and has been gluten-free for the past 7 years. First thing that happened, he grew 4 inches that first year! The Celiac was stopping him from growing. Now he is almost ready to move out on his own, so I have been putting his favorite recipes on recipe cards and all those into a photo album for him to take with him. I figured a photo album would be better than a recipe book in a single young man’s first apartment.
Anyway, I am writing because I saw you say you wanted to try to add a few things to your diet. Specificaly, oats and rice crispy bars. Yes, but with caution!!! The oats are ok, as long as you know the company they are from. Canadian oats are good. United States oats have cross-contamination issues in the field. Wheat (or barley) fields are planted right next to oat fields here in the US. That is how the cross-contamination occurs. The next is your Rice Krispy Bars. If you make them yourself, it is ok, because you can check your brand of crisped rice. Kellogs uses malt in its krispies. and malt is made from barley which is a definate no-no for celiacs. the rice is safe, the barley is not on the gluten-free diet. you should really look into exactly what gluten-free means…there is soooooo much to it!

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Lynn April 12, 2010 at 9:30 pm

@Lisa T, Thanks for you comment and the info. I am using gluten free rice krispies. All the ones in my regular store have the malt, so I have been buying the gluten free ones. As far as oats go, I am struggling with this one. I know the risk of contamination, but I have been eating oats without problems, but I am looking into a cheaper source for the gf ones to be safe. I am thinking/hoping that since I am gluten intolerant and not celiac, I might be able to tolerate regular oats, but the may be wishful thinking. :) Where I live I am very limited on my gf options. I pretty much have only one store that I can get stuff that is specialty like that and it is not close to me and gf oats were close to $5 per pound last time I checked. I am looking into some mail order options to try to find a cheaper gf version, but I am not sure there is one. I need to find something though b.c my oldest daughter has developed a nut and peanut allergy. So, our breakfast and esp cereal options are very limited between the gf and the nut free now. I would love to be able to serve oats w/o having to worry that they might bother me.

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Kathleen May 18, 2011 at 9:04 am

@Lynn,
Hi, I didnt know that oats had gluten in them! Thankyou for pointing that out. I ve been on a gluten free diet for five months, and my asthma seems to be getting worse instead of better. I do eat Quaker instant oatmeal in the morning. Maybe i can not have that either. It does not contain wheat, according to the box, but it must still have gluten in it. Dont they put that in the ingrediants?

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Lynn May 18, 2011 at 9:30 am

@Kathleen, Well oats in and of themselves do not have gluten in the, but they have a very high risk of cross contamination due to how they are grown and processed, so it is recommended that you those on a gluten free diet eat only gluten free oats.

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Tona May 10, 2010 at 3:29 pm

Thank you for so many great ideas…I have shared your blog with others

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kelly May 19, 2010 at 1:21 am

i am so happy i found your site. i also tested negative for celiac but have a family history and my body sure thinks i have it so i eat NO gluten! i have a blog that i never seem to post on but hope to get better at this summer. glutenfreeinhawaii@blogspot.com if you want to check out any recipes. it’s not so bad!!!

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Tracy July 26, 2010 at 9:12 pm

I feel for you Lynn, I have GERD too, and I’m learning to cope with it now that I no longer have insurance. I’ll definately be checking out your recipes. It’s nice to know I’m not alone in the path of suffering through the GERD ordeal.

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Lynn July 27, 2010 at 7:52 am

@Tracy, No you are not alone. I hope you are able to find some relief. I know gluten free is not the answer for everyone, but it has really helped me.

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A July 31, 2010 at 6:51 pm

Has anyone had erythema nodosum with this or just panniculitis? Hard nodules under the skin that are painful. Mostly on the forearms and ankles? Sometimes they get very red like a large mosquito bite…but they aren’t itchy, just sore. Also daily constipation and, weekly, extreme gastritis attacks…lots of burping and stomach pain. Also pale stools. After I first went gluten free I felt 1,000.00% better. No stomach discomfort for the first time in years! But then this week I got another attack. As far as I know I am not eating any gluten. However, I was still eating flax seed so maybe that is the culprit. Thanks very much! A

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Marcy Smith August 8, 2010 at 9:39 pm

@A, I recently came across an article on “Treating Candida Albicans Intestinal Yeast Overgrowth in Celiac Disease”.

http://glutenfreeworks.com/blog/2009/09/10/treating-candida-albicans-intestinal-yeast-overgrowth-in-celiac-disease/

I too recently experiencing problems similar to pre-diagnosis of celiac disease. I am going to discuss this with my doctor at my next appointment.

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Amy Lewis August 31, 2010 at 1:09 am

Thank you so much for sharing your story. Thank you, thank you, thank you. I just “stumbled upon” your site, and when I saw the link to your story I had to read. My experience is very, VERY similar.

Your recipes look amazing! I was just eyeing your apple bread pudding. I made bread pudding once with a loaf of french bread made with the Gluten Free Pantry pizza dough/french bread mix. If you haven’t tried it yet, I highly recommend it. I’ll be using it to try that apple recipe this fall. =)

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Lynn August 31, 2010 at 9:12 am

@Amy Lewis, I am so glad that you found my site. Sharing my story has helped me so much. I have been able to connect with others that have had similar experience as mine. My apple bread pudding was from by before gf days. :) I have not tried a gf version of bread pudding, but I need to. I love bread pudding. Thanks for the idea. I have not tried the GF pantry mixes. My daughter has a nut/peanut allergy so I have been very careful of what mixes I use. I will have to check into that one and it’s ingredients. So many gf mixes contain nut flours. Thanks for reading and I hope you enjoy the recipes.

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Heather-My Sweet Savings September 21, 2010 at 12:49 pm

Lynne,
Thanks so much for your site! I just found it through a friend’s recommendation. I am on a gluten-free diet right now as we try to figure out if it is the cause of my stomach issues. I can’t wait to try some of your recipes! Thanks again! :)

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Lynn September 21, 2010 at 6:43 pm

@Heather-My Sweet Savings, I am so glad that you found my site and are enjoying it. I post mainly gf recipes on this part of the site now. Although I do still cook and post regular recipes for those in my family that eat normal. I post my gf baked goods, pancakes, etc on my allergy site. You may want to check out that site too.
http://lynnskitchenadventures.com/lra/ I hope the gf diet helps your stomach issues. I know how difficult those issues can be.

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darc September 25, 2010 at 6:54 pm

Have you heard of the Paleolithic way of eating? I suggest you (and all others suffering with any diatary issues) do some reading on this. It’s not a diet but a lifestyle, and eliminates nearly all dietary irritants…really.

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Mary Donkersloot September 26, 2010 at 9:30 am

P.S. Lynn – How wonderful you were able to discover that gluten-free works for you. As a nutritionist, many of my patients are gluten intolerant. Your positive attitude and creative response is fabulous. Looking forward to meeting you.

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Lynn September 26, 2010 at 7:09 pm

@Mary Donkersloot, Thank you! Gluten free eating has changed my life. I feel better than I can ever remember feeling. I am looking forward to meeting you too.

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Bekki October 15, 2010 at 12:13 am

My daughter has GERD and I notice that she naturally avoids some foods. I wonder if gluten free would help her, although she has a mild case. I was wondering if it helped improve your asthma? I have been reading that wheat and dairy are foods to avoid due to the increase of mucus in the body they cause. Have you noticed a difference?

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Lynn October 15, 2010 at 8:53 am

@Bekki, Over the years I tried dairy free several times to help my allergy and asthma and I never noticed a difference, but I know many people do. My story of GERD’s and gluten free eating is not everyone’s, so I don’t know how or if it would help your daughter. GF eating though has changed my life and I am feel so much better. I recently posted this update on my asthma though on my allergy site if you are interested.

http://lynnskitchenadventures.com/lra/i-can-run/

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colin November 20, 2010 at 11:09 pm

I have been gluten free for about 3 weeks now and have never felt so good. I thought i had IBS for about the last ten years, then my stomach was getting cramps . The cramps were continuing for 6 hours a day.. I also lost 22 lbs in weight. So i went to a stomach doctor and took the tests! Has anyone heard of a breath test? it found that i had bad bacteria in my intestine.. Anyways, i have so much energy now and feel so positive and strong. It has changed my life. Weight has come back and i love eating gluten free now. I feel like its a treasure hunt looking for gluten free products.
Thanks alot! :) yahooooooo!!!

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JRA in CO March 19, 2011 at 8:43 pm

@colin, @ Colin:
Thanks for the pep talk! I struggle trying to be corn-free. It’s hard sometimes to eat out with friends – even when I’ve researched the place – and watch them eat all the yummy foods the I WISH I could eat while I pay full price for a whimpy salad! I need to see it as a treasure hunt and just enjoy the friendship. Thanks!

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Kristin January 9, 2011 at 8:08 pm

Please check out a condition called EE or EGID… My daughter has EE (well in remision now actually) but dairy, soy, eggs and triggered horrible reflux for her… reflux meds didn’t work and she had silent reflux ended up with pneumonia as an infant… we finally learned through scoping/biopsy for eosinphills (white blood cells) in her GI track that she had this… avoiding all trigger foods help so much…. not many dr.s know about it or check for it.. I had to do my own research and ask specifically to test for it… its a form of food intollances… so of the triggers show up on allergy tests others don’t….

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Kelly January 15, 2011 at 9:07 pm

@Kristin,
My son also has EE (eosinophilc esphogitis), eosinophilic gastroenteritis, and eosinophilic gastroenteropathy. He also has been in remission for 8 years. He was extremely ill from birth, and diagnosis was difficult. Johns Hopkins made the diagnosis when he was 14 months. He was so ill, no meds work, including steriods, so at 4 years old he was put on a feeding tube. He could have no food by mouth for about 18 months,then gradually we find a diet to work, which was no gluten, diary, soy, and others. He went off the tube when he was 8. Been in remission since. My point to this, is this diagnosis is rare and hard to get. Lynn your story sounds so familiar, hang tough. Wish blogs like this were around 16 years ago!!! You will certainly help people. And Kristen, I dont “meet” many people who know what EE is, even medical, thought it was great to know another in remission!!

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Kristin January 16, 2011 at 1:09 am

yes… It took a lot of digging on my own and time to conveince the medical people about it here.. I found an allergy board and eventually someone on there had once lived here and refered us to a GI and allergist who knew about it… For the most part she is in remission.. every once in a while I’ll see things that makes me thing she is flaring..but its very rare.. and she actually eats now which is huge! Good luck with all of it…

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Christine Martin February 22, 2011 at 12:47 am

Lynn,

I just wanted to make a quick comment re your post. My daughter went through years of issues similar to yours and she too was tested for celiac several times. Each time her blood test and biopsy came back either negative or inconclusive. However, her villi were very damaged and all her symptoms pointed to celiac. Her doc then tested her for the genetic gene for celiac, which showed she had the marker. He also had everyone in the family tested b/c if a first degree relative had it, then it was likely celiac for her as well. So be careful about cross contamination, because even with the negative tests, you may still have celiac. Take care!

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Catherine R. March 1, 2011 at 5:40 pm

Lynn, I am just now reading this and I had no idea how you suffered. I hope things are continuing in such a positive way for your health improvements. Today is the first day that I am trying a gluten-free diet. I have a horrendous rash on my hands and arms; red, inflamed, crusty, itchy, painful, oozing etc. and the clinic I am going to wants me to try a GF diet to see what happens now. Thanks for your inspiring story : )
Catherine R.´s last [type] ..Neat family

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Lynn March 1, 2011 at 5:45 pm

@Catherine R., Gluten free eating has definitely changed my life. I feel different than I have in years. I hope it helps you. It is not always an easy diet, but if it works it is worth it. It can be overwhelming at first, but try to focus on foods that are naturally gluten free while you adjust to the new way of eating. If you look around there are a lot of foods that you probably eat now that are gluten free or can easily be made gluten free. Let me know if I can help in any way. :)

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JRA in CO March 19, 2011 at 8:37 pm

Lynn, Just read this article of yours about eating GF… I had to snicker. I only recently found you and your recipes and have tried several of them out for my family (have the baked pb oatmeal in the oven as I type) – BUT I made the changes to keep them corn free! Here you’re writing about changing the wheat to corn, and I’m doing just the opposite. Sorry, no offense intended, but I have to laugh!
Thanks for the “from scratch” recipes! It’s a great help to me!!!
Blessings!
JRA in CO

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angela April 25, 2011 at 9:12 pm

hi lynn,

i just want to second what someone above said – with negative tests you can still have celiac. damage to your intestines means something more than an intolerance. you can end up with cancer or other autoimmune diseases if you eat gluten! it might not “bother” you so you notice, but it will cause damage and eventually you will notice!! good luck.

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Kathleen May 18, 2011 at 9:00 am

I ve been on a gluten free diet for five months and have noticed that my asthama seems to be getting worse instead of better. Is anyone else having this problem. I check all labels, and am not eating anything with gluten. Could I be allergic to oats or corn too?

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Lynn May 18, 2011 at 9:33 am

@Kathleen, Gluten free eating is not the answer for everyone and I am sure it must be hard to go gluten free and not receive all the answers you hoped for. It is common for those that have issues with gluten to also have issues with oats. I do not know the % but there is quite a few who cannot tolerate gluten or any oats. I know corn and dairy are also common foods that bother people. Maybe you could try eliminating one thing at a time from your diet at a time to see what triggers you. Or consult with your Doctor to see what testing could be done. I hope you find some answers soon.

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Kathleen May 18, 2011 at 5:13 pm

@Lynn,
Yes, I have been dairy free too. I dont have any health insurance, so I m trying to do this on my own. I will keep searching. Thankyou for your info.

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Jaeny June 20, 2011 at 11:27 pm

Wow, this is definitely one of the most difficult things to deal with, being sick and yet not knowing exactly what you are sick from. It’s good to know that a wheat and dairy free diet is helping a bit, at least you have something to stick to, and hopefully, you’ll get better and better overtime.

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Sheila June 21, 2011 at 12:16 am

I discovered your website today. We have a lot in common, I cannot have gluten at all & I am the freezer queen. Becuase of the gluten free diet, I buy meat in bulk, then use prepare what I want to marinate the meat in & put it all in a ziplock bag & freeze it. That way when the meat’s thawing out it is also marinating. I can’t wait to read more of your websit everyday.

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Moe July 5, 2011 at 12:56 am

Lynn,
I just found your site today while looking around at some other blogs. I have been CF for many years and now since May I have been GF. My blood work came back negative for CD and so I was told there was no possible way for me to have CD. Even though I have over 50 of the symptoms, including, thyroid issues, all the nasty bathroom symptoms, joint pain that left me in bed for days at a time, 4 miscarriages and being post menopausal at age 42 :O( But ya know what they say “it’s all in your head!”
I have been feeling wonderful, though I accidently drank some broth that had modified food starch and became ill within 20 min. There is no turning back for me! This past month has really allowed me to blossom, as I had been hiding at home in the bathroom for years! As a child I was in trouble all the time at home/school for ‘being in the bathroom again!” or for going to the nurses office after lunch because I was doubled over. Then as an adult being told it was stress, IBS, IBD, too much fat, too much fiber, not enough fiber, Prozac was offered as the magic pill for me. I am so thankful to have finally found something that makes me feel better. Even my family has noticed a difference in my.
Thanks again for your site.
Moe
Moe´s last [type] ..My first gluten-free & dairy-free grilled cheese

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Lynn July 5, 2011 at 8:38 am

@Moe, I know exactly what you mean and how you feel. Just remember that in the end you don’t need a celiac disease diagnosis to go gluten free. You know what makes your body feel better. That is what I had to finally decided. I know gluten makes me sick and really sick. I know I am a new person since going gluten free and that is all that matters. I hope you continue to feel better. Gluten free eating can be difficult to figure out, but once you do, it does get easier. I feel so much better that I do not miss all the things I can’t have. I am glad you found my site and thank you for reading!

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FoodJaunts July 15, 2011 at 3:54 pm

I love your website. My little brother has celiac and has a multitude of other allergies. It’s good to know that there are sites like this which can be a resource for him as he grows.

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Lewann Rice October 7, 2011 at 5:05 pm

Hi Lynn,
My husband has a gluten intolerance, it has been hard on our family separating foods and finding recipes that taste great and don’t make you feel like you are missing something. One thing I have found that we love, is Betty Crocker has cake mixes and brownie mixes that are gluten free. Oh and cookie mixes. I know we try to do everything homemade but during our trial and error period we fell back on these mixes that really made a difference to us.
Red mill has some great flours that are gluten free. Also Trader Joes makes a rice bread that is really only good as toast or we used it to make homemade stuffing for Thanksgiving last year. That was great tasting!
Hope this helps!

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Tasha March 9, 2012 at 12:59 pm

Very confused, four year old daughters celiac blood test results:
DGP Antibody, IGG <0.4
DGP Antibody, IGA 0.3
Anti-human TTG IgA 0.1
Anti-endomysial IgA negative
Total Serum 68

Help? Not sure what this all means.

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Lynn March 9, 2012 at 7:03 pm

I think it would be best to talk to your doctor about that. I am really not sure how they read the tests and what all the means. Sorry I can not be of more help.

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